On October 20, 2012 one of our "Board Babies", Bailey Sophia Coates, entered this world at 5:16 am weighing a 6 pounds 15 ounces. Her Mom, Beckie, has been a board member here for 7 years. Bailey completed the Coates family in every way. Just a short time later she would start twitching. After days of testing doctors found out that the twitches were actually seizures caused by a perinatal stroke. The stroke damaged 15 -18 percent of Bailey's brain, but you would never know by her vivacious character.
Fortunately when Bailey was born her cord blood was banked and her stem cells in that blood were saved. Duke University is currently conducting a trial with children that suffer from brain injuries using stem cell therapy. Bailey does not qualify for the study so she will receive treatment through their compassionate care program. The procedure is minimally invasive and completely outpatient, she will have an IV placed that will then infuse her own stem cells back to her intravenously. Once the cells enter her body they will migrate to the brain and repair some of the damage done. With this treatment still in trial there is no telling exactly what the outcome will be for Bailey but we pray it lessens the work she will have to do to overcome possible deficits in the future.
Duke University is out of Tricare Prime's network so they have denied the referral for treatment, not even the most standard blood test will be covered. The entire treatment will come at a cost of around $20,000. Although the cost is high there really is no other option and they have to do what is best for Bailey. She received her treatment on January 8, 2013 and will have her next transfusion soon.
If you would like to help support Bailey's family, please consider shopping at one of the following fundraisers!
Tupperware (Open until Jan. 31, 2013):
Facebook event link: http://www.facebook.com/events/581056438574605/
Eparty Catalog Link: http://order.tupperware.com/pls/htprod_www/!twx$eparty_ctl.p_dispatch?pv_v=invitation_view&pv_a=new&pv_eparty=de22630f007abb647510c6701657a4c6
Fundraiser Catalog Link: http://order.tupperware.com/pls/htprod_www/!twx$eparty_ctl.p_guest_welcome?pv_eparty=9bc0b2b8600be870ee9b05fcd3e81a02
40% of profit + commission will go to Baileys treatment
Jamberry Nails (Open Until Feb. 7, 2013):
(Select “Bailey’s Fundraiser” Party at final checkout)
Pampered Chef (Open Until Feb. 14, 2013)
Once on website go to Shop Online and it will ask you for organization or host name, put Bailey Coates, and it will link you right to the fundraiser
Arbonne Health and Wellness Products (Open Until Feb 4, 2013)
Facebook Event Link: http://www.facebook.com/events/326217050813242/326397317461882/?ref=notif¬if_t=plan_mall_activity
50% of any retail product will go to supporting Bailey
Lia Sophia (Open until Feb)
Facebook event: http://www.facebook.com/events/110181139158853/?fref=ts
Click 'Browse our Catalog' and then put either Saskia Harrelson or Bailey Coates in the Hostess Box to ensure that Bailey will receive all the credit for your purchase.
Origami Owl (Open until Feb 15, 2013)
20% of all orders placed on the website between now and Feb. 15th will be donated to Bailey
Velata (Opening Feb 1, 2013)
Scentsy (Opening Feb 1, 2013)
thirty-one (Opening Feb 1, 2013)